Based on the Results of the Qualitative Study

Вид материалаДокументы

Содержание


Clients of CSWs
Section 1 general information on situation in the country
1.2 Budget allocation and funding
1.4. Human rights
Section 2 public sector involvement
Universal access
Section 4 achievement of universal access targets
4.1. Aids strategy/programs
4.3. Rights of the key populations
Подобный материал:
1   2   3   4

ANNEX 1


METHODOLOGY


This project is based on Participatory Action Research (PAR) methodology, stipulating significant participation of representatives of the community, being subject of research, in the process of data collection, their interpretation and distribution of results. An integral part of this approach is commitment to scaling up the capacity of people and communities, participating in the research to bring benefits to all the participants.


In accordance with studies using PAR methodology one of the purposes of this project is improvement of understanding of the role of public sector, in particular key populations, in monitoring of different measures taken by the state to achieve key indicators by definite term as well as in support of participation of the public sector in implementation of some of those measures. Thus, a methodology has been developed where the main attention is paid to the opinion of public sector; quality methods are used, allowing interpretation of data, as well as certain elements of qualitative approaches.


Comprehensive analysis of all the issues related to universal access or offering solutions of all possible problems are not among the purposes of this project. Only two areas have been chosen to carry out this research: HIV prevention and access of the key populations to services. We have chosen those two lines of research as preliminary analysis has shown gaps in governmental commitments and measures implemented in those areas.


It was resolved to use estimated data related to the size of risk groups as well as PLWH, approved by the National Council on TB and HIV/AIDS dd. September 10, 2009.

In the report of WHO, MH, Alliance-Ukraine, UNAIDS (September 2009), the estimates of the groups are set forth as follows:

IDUs – 290,000;

CSWs – 78,000 (it is important that this number does not include women injecting drugs);

Clients of CSWs – (men) – 234,000;

MSM – 95,000;

Prisoners – 145,000 persons.

Altogether there were 7 in-depth interviews with national experts from MARPs and 24 interviews with representatives of key populations.


At the working meeting held on November 4, 2010 the following criteria of respondent selection were defined by a joint resolution of representatives of communities of IDUs, CSWs, MSM, prisoners and youth:

  • at least 5 people in each group;
  • age from 15 to 49 y.o., youth – up to 28 y.o.;
  • 2 PLWH in each group;
  • in groups of IDUs, prisoners, youth – 3 women and 2 men;
  • CSWs – women;
  • in each group 1 key person – leader of the national level – expert;
  • in each group 4 people from different regions of the country (including regional experts);
  • in each group 1 person from a small town.


Selection of regions and representatives of vulnerable communities for interviewing has been made based on suggestions of national experts:
  • each expert from a community submitted a list of self-organizations and initiative groups (IGs);
  • self-organizations/IGs were distributed by regions (north, south, west, center, east);
  • in every region by random choice a self-organization/IG was defined (every third one) for a respondent for interview to be selected (according to the criteria).


Project participants included different representatives of public sector, first of all key populations. Participation was voluntary. Though there is a possibility of participants’ stories being published, their personal data are confidential. The participants were to provide their informed consent.

Representatives of the following groups from the following regions were selected for the study on a random basis:


The sample is not representative – statistical analysis of the received data may not be considered as reliable.


The following questionnaire was used to carry out personal and telephone interviews:


SECTION 1 GENERAL INFORMATION ON SITUATION IN THE COUNTRY


1.1. DESCRIPTION OF SITUATION WITH AIDS EPIDEMIC IN THE COUNTRY, IN PARTICULAR:
  • In your opinion, how many people living with HIV are there in Ukraine? Where do you have such data from? From which last source have you received such information?
  • Do you know the speed of HIV/AIDS epidemic transmission among most-at-risk populations (people using drugs, sex workers, MSM, transgender people, women, youth, and others)?

1.2 BUDGET ALLOCATION AND FUNDING:
  • In your opinion, what share of Ukrainian public health care budget is allocated to fighting AIDS?
  • What part of this funding is directed to prevention and treatment programs?
  • Are you aware of changes that have been taking place in funding? (increase/decrease of funding in the last 5 years as well as changes in funding of activities in certain regions/areas of activities/populations)

1.3. PREVENTION:
  • What HIV prevention measures implemented in Ukraine do you know about?
  • In your opinion, which prevention activities (condoms, syringes (for IDUs), information materials, counseling of social workers and referral to other specialists depending on the needs of a client) are the most important for different key populations (CSWs, IDUs, MSM, PR, YOUTH)?
  • Do those prevention activities include integrated health care and not only prevention of virus transmission?

1.4. HUMAN RIGHTS:
  • What laws or regulations adopted in Ukraine or other mechanisms of protection of PLWH and key populations from direct or indirect discrimination do you know about?
  • Do you know about the National AIDS Strategy/Policy in Ukraine? Where did you get information about it?
  • In your opinion, are the issues of gender equality part of governmental AIDS policy or national AIDS strategy in Ukraine?
  • To what extent does implementation of this policy comply with the existing situation?

SECTION 2 PUBLIC SECTOR INVOLVEMENT
  • Have you taken part in activities related to provision of public access to HIV treatment, prevention, care and support? If yes, in what way?
  • Have you received any prevention materials in the recent year (condoms, syringes (for IDUs), information materials, counseling of social workers and referral to other specialists depending on the needs of a client, tests)? Who has provided such materials?
  • In your opinion, what share (of a group/general population) has access to prevention materials? Where do they get such materials from?
  • Do you know what targets did Ukraine set in the area of AIDS prevention, treatment, care and support?
  • How do you access such indicators (realistic, integrated, ambitious)?
  • Have you personally or your organization participated in defining of “target indicators” of Ukraine in fighting AIDS (road map)?
  • Are you aware of any other organizations having taken part in defining of target indicators (set forth in the road map)?
  • Have you received any support related to participation in the process of defining of the “target indicators”?
  • If yes, what support and from whom? (Government, UN, international organizations)
  • How do you evaluate participation of public sector in the process of development and review of “universal access target indicators”?
  • Which key issues and problems of fighting AIDS are covered (IDUs, PR, MSM, CSWs, YOUTH)?
  • In your opinion, which factors hinder participation of society in the process of fighting AIDS?
  • In your opinion, will attempts to provide universal access to HIV prevention, treatment, care and support in Ukraine be successful?
  • What are the main barriers/obstacles?
  • What recommendations on solving the issues can you offer?
  • Are there any studies related to fighting AIDS carried out by your organization? How do those data correlate with the official data (supplement them)? What are the main differences between the two sets of data?

SECTION 3 UNIVERSAL ACCESS
  • Have you taken part in defining the “target indicators”?
  • What “target indicators” have been agreed on initially?
  • Have those target indicators been reviewed after they were initially set?
  • What is the procedure of review of target indicators?
  • In general, what are the main gaps in target indicators?
  • How do those gaps hinder efforts to fight AIDS?
  • Based on your experience, what are the reasons of those gaps in target indicators?
  • In general, what target indicators are in line with the situation?
  • How can the quality of target indicators be increased? (describe the target indicators which have been or could be offered by you or your colleagues from the public sector)

SECTION 4 ACHIEVEMENT OF UNIVERSAL ACCESS TARGETS
  • In your opinion, what impact does the governmental red tape have on the provision of universal access?
  • How developed is the infrastructure of universal access provision in Ukraine?
  • How developed is the health care system (staff, medications, clinics) and its policy related to PLWH?
  • What barriers do families and communities face when accessing universal access programs? (Example)
  • How many people in need may be provided with the necessary support in Ukraine?

4.1. AIDS STRATEGY/PROGRAMS:
  • Are the agreed “universal access target indicators” included to the national AIDS strategy?
  • Does the national program include strategies of PLWH treatment (antiretroviral treatment and treatment of opportunistic infections as well as CD4 and viral load diagnostics)?
  • Does the national program include strategies of HIV/AIDS prevention among key populations, including women? Which ones?
  • What are the main gaps of the national program?
  • Has the government developed any strategies to improve the health care system and to solve the problems, related to access of PLWH to medications (first of all related to their accessibility, prices and human factor)?

4.2. PREVENTION:
  • What (governmental and other) strategies and programs providing access to every key population (indicate which one) to prevention services and materials (syringes, condoms, information) are you aware of?
  • What HIV prevention materials may be acquired and received in your region? (e.g., condoms or femidoms, lubricants, clean syringes, bleach/disinfectant for needles, opioid substitution treatment (OST), etc.) How easy are they to access?
  • What main prevention messages does the government use for HIV prevention? (e.g., abstinence, safe sex, fidelity, syringe exchange, etc.)
  • Are services of vertical transmission prevention (PMTCT) accessible to general population?
  • What does the package of services for vertical transmission prevention include?
  • Have you ever been tested for HIV? Have you heard about such a possibility?
  • Does staff of the organizations providing testing and counseling (counselors or employees performing orientation/counseling functions) receive any instructions on providing various services of prevention counseling for different key populations?
  • What prevention materials are available in the organizations providing counseling and testing for HIV?
  • Are there any barriers limiting possibilities of key populations in HIV prevention and health care in general?
  • Have you received any information related to HIV when studying at school, college or university or at work?
  • What do you know about HIV transmission?
  • Do you practice safe sex? In what way? How often?
  • Do you use disposable syringes when injecting drugs? How often? Where do you get them?

4.3. RIGHTS OF THE KEY POPULATIONS:
  • Are you aware of any programs or information campaigns preventing stigmatization and social isolation of such populations? Please give a detailed answer.
  • Does AIDS strategy/policy include any components aimed to protect the rights of people living with HIV or other key populations and provide for compliance with those rights? If the answer is positive, please describe those components.
  • How does the state provide for protection of and respect for the rights of people living with HIV and other key populations?
  • Has the state organized a monitoring system in order to protect the rights of people living with HIV and other key populations? If the answer is positive, please describe how this system works and what impact it makes.


4.4. TREATMENT:
  • What are the barriers (difficulties) for increase of access to treatment programs?
  • Are ARV-medications in your country easy to access?
  • What is the level of accessibility of ART (how many people do receive ARV-medications?)
  • What is the ratio of people having access to treatment to those who need it?
  • Where can people get ARV-medications/treatment?
  • What ARV-treatment components are accessible in your country?
  • Is ARV-treatment provided free of charge in state-funded treatment facilities?
  • If patients have to pay for medications, what is the cost of ART in your country (enclose a list of medications with prices)?
  • Are tests for monitoring of treatment provided in Ukraine? What tests?
  • Are they provided free of charge? If no, what is the price of tests for CD4 and viral load in your country (enclose the list of tests with prices)?
  • What medications for HIV treatment are included into the list of the key medications in your country?
  • Do you use generic medications? Which ones? Where do you purchase them?
  • Are there any formal or informal barriers limiting access of representatives of key populations (including women) to ART and public health care services in general?





1 HIV-infection in Ukraine. Bulletin #34. MH of Ukraine

2 HIV-infection in Ukraine. Bulletin #34. MH of Ukraine

3 National assessment of the HIV/AIDS situation in Ukraine as of early 2009. September 2009. MH, WHO, UNAIDS, ICF "International HIV/AIDS Alliance in Ukraine"

4 HIV-infection in Ukraine. Bulletin #34. MH of Ukraine

5 HIV-infection in Ukraine. Bulletin #33. MH of Ukraine

6 National Report on Monitoring Progress Towards the UNGASS Declaration of Commitment on HIV/AIDS in 2008-2009. ICF "International HIV/AIDS Alliance in Ukraine", MH, UNAIDS

7 National Report on Monitoring Progress Towards the UNGASS Declaration of Commitment on HIV/AIDS in 2008 -2009. ICF "International HIV/AIDS Alliance in Ukraine", MH, UNAIDS

9 National Report on Monitoring Progress Towards the UNGASS Declaration of Commitment on HIV/AIDS in 2008 -2009. ICF "International HIV/AIDS Alliance in Ukraine", MH, UNAIDS

13 National assessment of the HIV/AIDS situation in Ukraine as of early 2009. September 2009. MH, WHO, UNAIDS, ICF "International HIV/AIDS Alliance in Ukraine"

14 National assessment of the HIV/AIDS situation in Ukraine as of early 2009. September 2009. MH, WHO, UNAIDS, ICF "International HIV/AIDS Alliance in Ukraine"

15 HIV-infection in Ukraine. Bulletin #34. MH of Ukraine

16 National assessment of the HIV/AIDS situation in Ukraine as of early 2009. September 2009. MH, WHO, UNAIDS, ICF "International HIV/AIDS Alliance in Ukraine"

17 HIV-infection in Ukraine. Bulletin #34. MH of Ukraine

18 HIV-infection in Ukraine. Bulletin #34. MH of Ukraine

19 HIV-infection in Ukraine. Bulletin #33. MH of Ukraine

20 National Report on Monitoring Progress Towards the UNGASS Declaration of Commitment on HIV/AIDS in 2008 -2009. ICF "International HIV/AIDS Alliance in Ukraine", MH, UNAIDS

21 National Report on Monitoring Progress Towards the UNGASS Declaration of Commitment on HIV/AIDS in 2008 -2009. ICF "International HIV/AIDS Alliance in Ukraine", MH, UNAIDS

22 National Report on Monitoring Progress Towards the UNGASS Declaration of Commitment on HIV/AIDS in 2008 -2009. ICF "International HIV/AIDS Alliance in Ukraine", MH, UNAIDS

23 HIV-infection in Ukraine. Bulletin #34. MH of Ukraine

24 HIV-infection in Ukraine. Bulletin #33. MH of Ukraine

26 HIV-infection in Ukraine. Bulletin #34. MH of Ukraine

27 National Report on Monitoring Progress Towards the UNGASS Declaration of Commitment on HIV/AIDS in 2008 -2009. ICF "International HIV/AIDS Alliance in Ukraine", MH, UNAIDS

28 National Report on Monitoring Progress Towards the UNGASS Declaration of Commitment on HIV/AIDS in 2008 -2009. ICF "International HIV/AIDS Alliance in Ukraine", MH, UNAIDS

29 HIV-infection in Ukraine. Bulletin #34. MH of Ukraine

31 National Report on Monitoring Progress Towards the UNGASS Declaration of Commitment on HIV/AIDS in 2008 -2009. ICF "International HIV/AIDS Alliance in Ukraine", MH, UNAIDS

37 National Report on Monitoring Progress Towards the UNGASS Declaration of Commitment on HIV/AIDS in 2008 -2009. ICF "International HIV/AIDS Alliance in Ukraine", MH, UNAIDS

38 s.org/ru/

39 Ibid.

40